Today at noon we go to get mom's central line placed in.... for a person who hates needles she is scared to death. I've tried to explain what and how they do it, the fact that she won't have to be stuck every time now....what is left in blah, blah, blah to no avail. She's scared..and that's okay. Chemo regimen will be rough especially for the first 4 weeks. Tomorrow, we start with a drug that she will be infused with for 2 hours at the hospital and then continue with another that will be infused in her continuously by an infuser that will be attached to her so we will be able to bring her back to the hotel. We've stocked up on all supplies that the doctor suggested to help alleviate symptoms using the pediatric versions of some since they are liquid and hopefully will be able to be absorbed through her stomach better. they will check her tumors every 4 weeks and her calcium level quite often...once they decrease, she will officially go on a clinical trial. The next 2 months are crucial.
I've been very blunt with her....we had "the talk" even though my brother was about to kill me...but I had to know, she had to know...she may never go home..never see her chickens, turkeys, guineas, the lake..it may end here. I wanted to make sure she knew and made the choice...not us making it for her. She replied, "I have to fight. I have to see the kids grow up." I told her I would only ask it once..and after this, she needs to tell me when to pull off the fight and move her home.
Dad is having such a hard time...such a hard time. He gets confused easy which is to be expected. We left them alone last night as mom was getting another IV transfusion. The doctor had wanted to add a couple of meds to her IV. He put in the orders "as needed" . Well, when the nurse read off the orders to my dad....he said she doesn't need it!!!!!!!! So they didn't give it to her. Bobby and I were contacted and realized what had happened...talked to the nurse and then to dad.... the meds were for nausea and pain and true she wasn't having it right then but would be that night if she didn't have the meds!!!!!!! We were able to get them added back on and she had a better night.
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